Wednesday, August 30, 2006

Tubeless in Alabama


Yeah! The tube is out! It was relatively painless. The nures was right, it hurt more ripping off the tape than taking out the tube.
I'm feeling better, but I still have a way to go with oral follow up meds. But I can feel my legs, which is always a good thing. The hot flashes will subside after a while. I'm just happy to have that darn thing out. Yeah!

Monday, August 28, 2006

IV League

I've recently become the newest member of the MS IV League! No, I'm not going of to some brick adorned college of yore. I'm just currently experiencing my first major flaire-up.
YEAH!!!
urgh.
I get to walk around with a tube in my arm for the next few days. Every day at 4:30pm Chris and I settle in to relax and watch a movie while a gravity cathiter drips liquid medicine through my veins for two hours. This treatment is apparetly common for people fighting the MonSter.
It is rather nice that I did get pricked with a needle only once. But I should have chose my arms wiser. Note: Don't pick your dominant arm for an IV that's going to stay in for longer than a day... or hour.
It's kind of funny, because if I do have to go to the hospital for, God forbid, anything I come fully equiped and ready to drip. No needles needed. Hmm... maybe I should just keep it in for a while. Or maybe we should all be installed with IV's so we don't have to worry about that darn needle! Or maybe, I should just lay off the typing until the medicine stops making me loopy.
Yeah, that sounds like a good idea.
Night, folks.

Sleep Apnea

I've been doing some sleep studies and it has shown that I have sleep apnea. The good thing is that this explains my insomnia and extreme fatigue and napping. :) Trying to stay positive. Chris has assured me that after I get my CPAP hooked up and settled in I'll have the best sleep of my life... because, technically, I've never had a good night's sleep that I can remember. So, that is very exciting... honestly!
I would recommend a sleep test to anyone... ANYONE and EVERYONE. If nothing else, it's kind of a cool thing to go through. And, honestly, do you really know what you do when you sleep? I didn't know I kicked so much, which is part of how I would wake myself up when I stopped breathing.
I look at my family and go, "huh... sleep problem? Not me!" :) j/k. I love you, Rano family, but between the snorers, kickers, and narcoleptics I don't know why we all don't get it done. It's like taking a night away in a hotel room. And I find it's always interesting to find out more about yourself.
For Instance: I'm able to put together these facts and make my own (very, very un-scientific) conclusions: a) I have low blood pressure. b) I have multiple sclerosis. c) I have sleep apnea. So my conclusion IS (dum-dum-very-dum!): Due to my low blood pressure, my heart rate and breathing slow down when I rest to a very unstable depth. Thus, the sleep apnea, in which I do not obtain the oxygen needed and wake myself up at very random times. This lack of oxygen has caused the plaque/leasions in my brain over time, and lack of proper sleep. This, in turn, has caused my MS.
Now, I am no doctor by any means, but this seems very likely to the currently drugged up (perscriptions, people!) me. But, not to be repeated to the sane public. Just a theory of a young girl.
Anyway, my real conclusion is this: Take a sleep test, it's worth the rest.

Multiple Sclerosis

In the past few months I have been diagnosed with Multiple Sclerosis. I've been slowly getting used to the idea, though it still hasn't hit me that this is for life. My family has been the basis of my support group. Chris, my boyfriend, has been a great support through this task God has given me. And his family has been a strong prayer basis for me as well. All of you, whom I know read this, have been a great support for me. Thank you. You know how hard it is for me to get a shot at the doctors, and now I'm able to give myself one... though lately Chris has been stepping in whyen I need a break, or need not to have a nervous break-down.
Thank you, everyone, for your support. I am stronger because of your prayers and good will.