http://www.sliceoflifetv.com/index.php?id=2c89109d
You guys have got to go to this site! It's freaky!
Monday, September 24, 2007
Monday, September 10, 2007
Sick weekend
Yup, this weekend I was ill. It started on Thursday, I could feel it in my sinuses. By Friday I was dizzy a lot and my throat was hurting a lot. I made it through most of work, but had to go home early to rest. Most of saturday was spent in bed as well. Sunday I got up and Chris took me out for a little bit before I had to set down to write my homework paper. I am doing much better today. The only way of knowing that I've got a problem with my sinuses is when I lay my head down.
Wednesday, September 05, 2007
MS symptoms, come and feel em
This site is a great site that everyone should go to and see a basic playout of MS makes you go through.
http://www.ms-gateway.ie/understanding-ms/ms-simulator-35.htm
http://www.ms-gateway.ie/understanding-ms/ms-simulator-35.htm
Thursday, August 23, 2007
Tuesday, August 21, 2007
Money money money
Grrr... so I don't have an AHB debit card yet, and I'm out of checks (or at least I can't find them). I am still figuring out this transfer thing, so I'm currently out of money (or unable to get to it, as is the case of AHB). It's just making things difficult because the bills are coming in now. It's times like this that I really wish I had a credit card.
Don't worry folks I'm getting my ahb stuff, it's just taking it's time to get to me... urgh. The other ones... well, they're pretty empty or untouchable right now.
Besides this is just be venting.
Don't worry folks I'm getting my ahb stuff, it's just taking it's time to get to me... urgh. The other ones... well, they're pretty empty or untouchable right now.
Besides this is just be venting.
Monday, August 20, 2007
Cell Phone
Hey, for some reason the sim card on my phone is not working. Sorry, I'm gonna go get it figured out in a little bit. It's bothersome.
Wednesday, August 15, 2007
possible cure
Experimental MS Vaccine Proves Safe in Early Test
It could lead to individualized treatments for other autoimmune diseases, researchers say
By Steven Reinberg
Posted 8/13/07
MONDAY, Aug. 13 (HealthDay News) -- An experimental DNA vaccine to fight multiple sclerosis is safe and may also be effective, results of a small Canadian trial suggest.
The vaccine, called BHT-3009, works by preventing the immune system from attacking the myelin sheaths that protect nerve cells in the brain and spinal cord. The destruction of myelin eventually destroys a nerve cell's axon, which prevents cells from transmitting messages and is one of the hallmarks of MS.
"This was an early trial of a new class of drugs for autoimmune disease in general and for MS in particular," said lead researcher Dr. Amit Bar-Or, of McGill University's Montreal Neurological Institute.
The idea of the vaccine is to change the immune cells that target the nervous system, Bar-Or said. "What we want to do is focus on just those cells that are involved in the disease process," he said. "So antigen-specific therapies are designed to try to modify or eliminate only those bad-guy cells that are involved in the disease process."
The vaccine makes use of a backbone of DNA onto which is attached myelin basic protein, which is a component of myelin. When you inject it, the vaccine reduces the body's ability to attack myelin, Bar-Or explained.
The findings were published online Monday in Archives of Neurology and were expected to be published in the October print issue of the journal.
According to the National Multiple Sclerosis Society, the disease's symptoms are unpredictable and vary from person to person, and even from time to time in the same person. One person may experience abnormal fatigue, while another might have severe vision problems. A person with MS could have loss of balance and muscle coordination, making walking difficult. Another person could have slurred speech, tremors, stiffness and bladder problems.
In the new study, Bar-Or and his colleagues gave the vaccine to 30 patients with relapsing-remitting MS, which is characterized by alternating periods of symptoms and then relief from those symptoms. At one, three, five and nine weeks, the study participants received injections of BHT-3009 or a placebo. After 13 weeks, those who had been given a placebo were given four injections of BHT-3009.
The researchers evaluated the patients using MRI scanning. They found that the vaccine was well tolerated and also appeared to produce antigen-specific immune changes that stopped the destruction of myelin. These changes were seen in the reduction in the number of CD4+ T-cells -- white blood cells that target myelin.
Bar-Or cautions that much more work remains to be done to see if the vaccine is effective. Whether it represents a possible cure is unknown; all that is known right now is that it's safe. "The trial did provide a biological proof of concept, he said. "In addition, there are other targets in the brain that are involved in MS.
"Now that this biological principle appears to be sound, one could develop DNA vaccines to different targets," he said. "Ideally one could develop a cocktail that deals specifically with an individual's MS."
Based on theses findings, the Montreal researchers have started a phase 2 trial testing BHT-3009 on 290 patients with MS.
The same approach could also be used to treat other autoimmune diseases, such as type 1 diabetes, lupus, myasthenia gravis and rheumatoid arthritis, the researchers said.
Patricia O'Looney, vice president of biomedical research programs at the National Multiple Sclerosis Society, thinks this new approach is promising, but the concept still needs to be proven in larger trials.
"This is like science fiction. It's something that wouldn't have even been thought about 10 years ago," O'Looney said.
Still, the results offer hope, she said.
"This is a fascinating approach to try to control the immune activity with folks with MS," she said. "We are always looking for new ways to help people with MS. It is important that this is a novel idea, and we will just have to watch and see if it goes forward."
For more on multiple sclerosis, visit the National Multiple Sclerosis Society.
It could lead to individualized treatments for other autoimmune diseases, researchers say
By Steven Reinberg
Posted 8/13/07
MONDAY, Aug. 13 (HealthDay News) -- An experimental DNA vaccine to fight multiple sclerosis is safe and may also be effective, results of a small Canadian trial suggest.
The vaccine, called BHT-3009, works by preventing the immune system from attacking the myelin sheaths that protect nerve cells in the brain and spinal cord. The destruction of myelin eventually destroys a nerve cell's axon, which prevents cells from transmitting messages and is one of the hallmarks of MS.
"This was an early trial of a new class of drugs for autoimmune disease in general and for MS in particular," said lead researcher Dr. Amit Bar-Or, of McGill University's Montreal Neurological Institute.
The idea of the vaccine is to change the immune cells that target the nervous system, Bar-Or said. "What we want to do is focus on just those cells that are involved in the disease process," he said. "So antigen-specific therapies are designed to try to modify or eliminate only those bad-guy cells that are involved in the disease process."
The vaccine makes use of a backbone of DNA onto which is attached myelin basic protein, which is a component of myelin. When you inject it, the vaccine reduces the body's ability to attack myelin, Bar-Or explained.
The findings were published online Monday in Archives of Neurology and were expected to be published in the October print issue of the journal.
According to the National Multiple Sclerosis Society, the disease's symptoms are unpredictable and vary from person to person, and even from time to time in the same person. One person may experience abnormal fatigue, while another might have severe vision problems. A person with MS could have loss of balance and muscle coordination, making walking difficult. Another person could have slurred speech, tremors, stiffness and bladder problems.
In the new study, Bar-Or and his colleagues gave the vaccine to 30 patients with relapsing-remitting MS, which is characterized by alternating periods of symptoms and then relief from those symptoms. At one, three, five and nine weeks, the study participants received injections of BHT-3009 or a placebo. After 13 weeks, those who had been given a placebo were given four injections of BHT-3009.
The researchers evaluated the patients using MRI scanning. They found that the vaccine was well tolerated and also appeared to produce antigen-specific immune changes that stopped the destruction of myelin. These changes were seen in the reduction in the number of CD4+ T-cells -- white blood cells that target myelin.
Bar-Or cautions that much more work remains to be done to see if the vaccine is effective. Whether it represents a possible cure is unknown; all that is known right now is that it's safe. "The trial did provide a biological proof of concept, he said. "In addition, there are other targets in the brain that are involved in MS.
"Now that this biological principle appears to be sound, one could develop DNA vaccines to different targets," he said. "Ideally one could develop a cocktail that deals specifically with an individual's MS."
Based on theses findings, the Montreal researchers have started a phase 2 trial testing BHT-3009 on 290 patients with MS.
The same approach could also be used to treat other autoimmune diseases, such as type 1 diabetes, lupus, myasthenia gravis and rheumatoid arthritis, the researchers said.
Patricia O'Looney, vice president of biomedical research programs at the National Multiple Sclerosis Society, thinks this new approach is promising, but the concept still needs to be proven in larger trials.
"This is like science fiction. It's something that wouldn't have even been thought about 10 years ago," O'Looney said.
Still, the results offer hope, she said.
"This is a fascinating approach to try to control the immune activity with folks with MS," she said. "We are always looking for new ways to help people with MS. It is important that this is a novel idea, and we will just have to watch and see if it goes forward."
For more on multiple sclerosis, visit the National Multiple Sclerosis Society.
Wednesday, August 08, 2007
Class-ic
So I'm trying to get my classes in order so I can finally, finally!, graduate. I thought I'd be able to take the OSU online Freshman Comp 2 class, but it's already full. I'm gonna try and call the English Department and see what can be done. Otherwise I have two other options and I'm gonna aim to do both. I can apply for the morning class on Mondays and Wednesdays here at AUM. The main concern with this thing is the stuff it requires. Other than that I'm also going to try and take the CLEP test again for this, and it'll be good if I've already started the class, just in case I don't do well. But either way, I've finally got a back-up... let's hope one of them works out!
MS Update
This last weekend hasn't been bad, but it's been an odd one. Katie and I went bowling on Friday, but I got so weak I couldn't bowl my normal 10 and 11 pound balls. I had to wearily bowl a 9 pound, which is the smallest ball they allow adults to bowl with. It wasn't a problem except I was so off balance with everything my score was cut in half. I kept trying my luck with the heavier balls, but I stopped after one point where I just sat down and pushed the ball down the lane.
It was a weird fatigue, nothing major. Just felt odd because of the weakness.
And since then I've had balance problems that eventually led to the last few days of drop foot. It's made me recieve a number of looks and comments from fellow workers. Basically if I'm not over-compensating for it by marching everywhere, I look like I'm drunk.... or drunk marching. It's been interesting, but it's keepin my balance and feet from dragging that's more on my mind than any comment.
It was worse on Tuesday when my legs felt like they were asleep... it's more so in my right leg.
I'm in debate about a chiropractor or not for this job.
It was a weird fatigue, nothing major. Just felt odd because of the weakness.
And since then I've had balance problems that eventually led to the last few days of drop foot. It's made me recieve a number of looks and comments from fellow workers. Basically if I'm not over-compensating for it by marching everywhere, I look like I'm drunk.... or drunk marching. It's been interesting, but it's keepin my balance and feet from dragging that's more on my mind than any comment.
It was worse on Tuesday when my legs felt like they were asleep... it's more so in my right leg.
I'm in debate about a chiropractor or not for this job.
Saturday, August 04, 2007
Memories
Today I was reminded of a very old and very painful sadness. It's weird. I sit in the office talking to my dr., and all the sad memories I bring up and am almost on tears about don't hurt and make me feel the way this one does. He's an aweful person that I miss. And it puts an aweful feeling in my life. I suddenly have a waive of depression worse than, and different than, any other. I think it's worse because how it makes me feel. I don't want to stop thinking about it, as much as I know I need to to get out of the funk it's set me in.
I mean, I was having a perfectly great day, when all of a sudden a face came up on my computer screen that, in spite of not seeing for years, I knew so well. I cannot describe my pain for him as anything other than sadness. Immediately questions of "why?" explode in my mind, almost to fast to catch them, but then they all barrage me and leave wounds so deep I don't think any answer another person would give would heal them.
I mean, I was having a perfectly great day, when all of a sudden a face came up on my computer screen that, in spite of not seeing for years, I knew so well. I cannot describe my pain for him as anything other than sadness. Immediately questions of "why?" explode in my mind, almost to fast to catch them, but then they all barrage me and leave wounds so deep I don't think any answer another person would give would heal them.
Tuesday, July 24, 2007
Poetic Excuses to Miss Work
Dear sir I write this note to you
To tell you of my plight
For at the time of writing it
I'm not a pretty sight
My body is all black and blue
My face a deathly grey
And I write this note to tell you
Why I am not at work today
Whilst working on the fourteenth floor
Some bricks I had to clear
But to toss them down from such a height
Was not a good idea
The foreman wasn't very pleased
He is an awkward sod
And he said I had to cart them
Down the ladder in my hod
Well moving all these bricks by hand
It was so very slow
So I hoisted up a barrel
And secured the rope below
But in my haste to do the job
I was to blind to see
That a barrell full of building bricks
Was heavier than me
And so when I untied the rope
The barrell fell like lead
But clinging tightly to the rope
I started up instead
I shot up like a rocket
'til to my dismay I found
That half way up I met
The bloody barrel coming down
The barrel broke my shoulder
As to the ground it sped
And when I reached the top
I banged the pulley with my head
Still clinging tightly to the rope
From this almighty blow
Whilst the barrel spilled out half it's bricks
Some fourteen floors below
Now when these bricks had fallen
From the barrel to the floor
I then outweighed the barrel
And so started down once more
Still clinging tightly to the rope
My body racked with pain
And halfway down I met
The bloody barrel once again
The force of this collision
Halfway down the office block
Caused multiple abrasions
And a nasty case of shock
Still clinging tightly to the rope
I fell towards the ground
And landed on the broken bricks
The barrel had scattered round
I lay there bleeding on the ground
I thought I'd passed the worst
But the barrel hit the pulley wheel
And then the bottom burst
A shower of bricks rained down on me
I didn't have a hope
As I lay there bleeding on the ground
I let go of the bloody rope
The barrel now being heavier
It started down once more
And landed right across me
As I lay there on the floor
It broke three ribs and my left arm
And I can only say
I hope you'll understand
Why I am not at work today !!!
To tell you of my plight
For at the time of writing it
I'm not a pretty sight
My body is all black and blue
My face a deathly grey
And I write this note to tell you
Why I am not at work today
Whilst working on the fourteenth floor
Some bricks I had to clear
But to toss them down from such a height
Was not a good idea
The foreman wasn't very pleased
He is an awkward sod
And he said I had to cart them
Down the ladder in my hod
Well moving all these bricks by hand
It was so very slow
So I hoisted up a barrel
And secured the rope below
But in my haste to do the job
I was to blind to see
That a barrell full of building bricks
Was heavier than me
And so when I untied the rope
The barrell fell like lead
But clinging tightly to the rope
I started up instead
I shot up like a rocket
'til to my dismay I found
That half way up I met
The bloody barrel coming down
The barrel broke my shoulder
As to the ground it sped
And when I reached the top
I banged the pulley with my head
Still clinging tightly to the rope
From this almighty blow
Whilst the barrel spilled out half it's bricks
Some fourteen floors below
Now when these bricks had fallen
From the barrel to the floor
I then outweighed the barrel
And so started down once more
Still clinging tightly to the rope
My body racked with pain
And halfway down I met
The bloody barrel once again
The force of this collision
Halfway down the office block
Caused multiple abrasions
And a nasty case of shock
Still clinging tightly to the rope
I fell towards the ground
And landed on the broken bricks
The barrel had scattered round
I lay there bleeding on the ground
I thought I'd passed the worst
But the barrel hit the pulley wheel
And then the bottom burst
A shower of bricks rained down on me
I didn't have a hope
As I lay there bleeding on the ground
I let go of the bloody rope
The barrel now being heavier
It started down once more
And landed right across me
As I lay there on the floor
It broke three ribs and my left arm
And I can only say
I hope you'll understand
Why I am not at work today !!!
Wisdom teeth and stupidity
So I got my wisdom teeth taken out yesterday and I'm acting pretty stupid today. The hydrocodine is making me really itchy. Yet another allergy I'm gaining due to the Avonex immune system boost. I'm really loopy and will update ya'all later.
Sunday, July 01, 2007
Oh Yeah
This weekend... Hmm, it's actually fine. I've been really tired, but manageable. Chris and I went and say Live Free or Die Hard today, that was fun.
My shot burned when he gave it to me. It must have hit a nerve, or something. And I had a weird reaction to the adheisive on the bandaide... really weird. Chris says it's like hives. It's kind of like when you get too much sun and you get the blisters... or pimple like stuff. Blisters, I guess... it itches ever so often. Very odd. Other than that, hmmm... left hand loosing sensation. Dizzy, and loss of balance, but fine otherwise. Just the shot stuff is odd.
My babies are fine and loving that I'm laying down with them.
My shot burned when he gave it to me. It must have hit a nerve, or something. And I had a weird reaction to the adheisive on the bandaide... really weird. Chris says it's like hives. It's kind of like when you get too much sun and you get the blisters... or pimple like stuff. Blisters, I guess... it itches ever so often. Very odd. Other than that, hmmm... left hand loosing sensation. Dizzy, and loss of balance, but fine otherwise. Just the shot stuff is odd.
My babies are fine and loving that I'm laying down with them.
Plumbers
So I've got this plumber that did a great job fixing my toilets and leaky sink. I had to hire him because my original plumber wouldn't work with me, and he agreed to pay for another guy to come in and do the work. But now he's saying he's not going to pay me the 325 the other guys charged me. Frankly it's bull shit.
This Alex guy, the one who said he'd come out and fix everything, but never did, is refusing to pay me back even though I have him recorded on my voicemail saying that he would. He's going back on his word and frankly I can't afford to not get the money. I mean, that's almost half my monthly morgage! He wasn't doing his job, and he told me to get someone else and that he'd pay for him to do the work, and now he's saying he's not going to pay for it. Grrrr... I hate people who take advantage of me. It's just not right. He seemed like such a nice person, but now he just seems like a bastard. I left him a message saying that I'd be by his work expecting the check. But that's because he's always avoiding me, and I need that money! It's not fair that he takes advantage of me. Grrr... sorry, I'm so tired of this crap. I just want to sleep and get this settled. I don't want to have to take him to court, but he's completely in the wrong about this stuff. Grrrr
Friday, June 29, 2007
Today's Update
Today was very odd. I need my chocolate fix, so Andy's tossing handfuls of Tootsie Rolls at me.
My bowels finally decided to talk back without dyruetics, fun. My nose bled again, this morning. Which, of course made me dizzy, which of course made me have the short attention span thingy.
Other than that... I got a new phone today! And lost it before it even got out of the box. Not really, but they had forgotten to put it in the actual box. After being put on hold for a long long time, they finally agreed to send me another one. Thank God. It just goes to prove I can't hold onto a phone.
My bowels finally decided to talk back without dyruetics, fun. My nose bled again, this morning. Which, of course made me dizzy, which of course made me have the short attention span thingy.
Other than that... I got a new phone today! And lost it before it even got out of the box. Not really, but they had forgotten to put it in the actual box. After being put on hold for a long long time, they finally agreed to send me another one. Thank God. It just goes to prove I can't hold onto a phone.
Thursday, June 28, 2007
Oh, I knew I forgot something! Besides the obvious memory loss (more to blame on the loss of sleep), is this bubbling feeling I have in my right thigh, about midway up. It'd a really odd sensation. Other than that, I've had a lot more muscle spasms/twitching and my balance & gait have been off... all of which can be due to the sleep thing, I just don't know about the bubbling feeling. A bit of incontinence, yuckage.
Fatigue
Excrutiatingly fatigued... both today, yesterday and the day before... especially today. I am sooo tired, but my body's awake, it's mainly my eyes. MS sucks. I mean, I can keep working and whatnot, I'm just really tired. Urgh.
Also, my feet had kind of lost feeling the other day, not tingly, just not anything. My hands were similar when I was taking my nails off on Thursday. Now they're just tight in my fingers (the usual suspects: outter ones more so than inner.
Now, though, my feet are really sensitive, so all those days without shoes, now I need them, but I still want to walk around without them.
Also, my feet had kind of lost feeling the other day, not tingly, just not anything. My hands were similar when I was taking my nails off on Thursday. Now they're just tight in my fingers (the usual suspects: outter ones more so than inner.
Now, though, my feet are really sensitive, so all those days without shoes, now I need them, but I still want to walk around without them.
Tuesday, June 26, 2007
Last Few Days
These last few days have been kind of weird, and I don't know why. On Thursday (19th) I couldn't get myself to get out of bed for work in the morning. I could have slept all day if I didn't feel that I needed to be somewhat productive, but that only moved me to the couch. Same for Friday, non-productive and hard to move, very fatigued.
I feel aweful when I miss work, I hate missing it. So on Saturday I was slightly better, because I went to work. Day after the shot, but I managed until 5:30. Tired and just wanted to sit down all day and not move from my chair, not even to get water.
Sunday was better, I thought... I was tired and unproductive, and could have slept most of the day, but Chris was restless so we went out to walk around. My stomache was hurting, cramping up and whatnot (which is not supposed to happen this week). I thought it was from a lack of food, so we went to eat. On our way home, he had to pull over because I went pale and quickly threw up all of that nice meal I'd just eatten. Ewe. Before that moment, my stomache felt streatched and was painful to the slightest touch. I did feel a lot better afterwards, though. I don't know what caused me to vomit, but I did, and was amazingly awakened by my body after that.
Monday: Not bad, but just wanted to sleep all day. Did some laundry to feel productive and called around town for some stuff I needed.
Today, Tuesday, I have a couple of doctor apointments (my one-year check up, and my orthodontist), but right now I'm waiting for the plumbers to get back to finish up the toilets. They had to go get some part. lalalala
I feel aweful when I miss work, I hate missing it. So on Saturday I was slightly better, because I went to work. Day after the shot, but I managed until 5:30. Tired and just wanted to sit down all day and not move from my chair, not even to get water.
Sunday was better, I thought... I was tired and unproductive, and could have slept most of the day, but Chris was restless so we went out to walk around. My stomache was hurting, cramping up and whatnot (which is not supposed to happen this week). I thought it was from a lack of food, so we went to eat. On our way home, he had to pull over because I went pale and quickly threw up all of that nice meal I'd just eatten. Ewe. Before that moment, my stomache felt streatched and was painful to the slightest touch. I did feel a lot better afterwards, though. I don't know what caused me to vomit, but I did, and was amazingly awakened by my body after that.
Monday: Not bad, but just wanted to sleep all day. Did some laundry to feel productive and called around town for some stuff I needed.
Today, Tuesday, I have a couple of doctor apointments (my one-year check up, and my orthodontist), but right now I'm waiting for the plumbers to get back to finish up the toilets. They had to go get some part. lalalala
Monday, June 11, 2007
For a Walk
I took Pixi for a walk today... it was fine, except for the fact that my legs felt like lead weights had been strapped to them. That was my biggest note to take it easy. It took a while me to get where I could feel comfortable walking, so I got to the point that if I just kept walking I was fine... otherwise everything was well.
It was cute because all the neighborhood kids know the dogs so they just came right up and were calling her name and all. It was funny, but it made me really tired in the end.
Wednesday, May 16, 2007
Rumble & complain
Rumble & Complain aka. Now let me ask you something
Not only are the Oslen twins the next "good" set of Bond Girls (WTF!!), but... (work related rumble)
... I don't know how many times I have been told "Now let me ask you something." Aurgh!
And ask for my previous grumble: I told someone to look for those numbers on their ticket and they replied "well, there are actually three sets of numbers" and so when I told him yes sir, I need the number set on the very bottom (the most bottom of the sets, sir) he proceeded to read me off all three numbers. Grrrr..
Not only are the Oslen twins the next "good" set of Bond Girls (WTF!!), but... (work related rumble)
... I don't know how many times I have been told "Now let me ask you something." Aurgh!
And ask for my previous grumble: I told someone to look for those numbers on their ticket and they replied "well, there are actually three sets of numbers" and so when I told him yes sir, I need the number set on the very bottom (the most bottom of the sets, sir) he proceeded to read me off all three numbers. Grrrr..
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